Person vs Identity first
Person first = ‘people with epilepsy’, shared humanity and uniqueness, multi-faceted identities
Identity first = ‘autistic people’, disability as central, defining charateristic that cannot be separated from the individual, embraces and destigmatises disability identity….
Medical vs. Social model
Medical: Disability = impairment
Impairment needs to be treated, cured, fixed or at least rehabilitated
Social: Disability ≠ impairment
Impairment is individual and private; disability is structural and public.
Doctors and professions seek to remedy impairment, the real priority is to accept impairment and to remove disability
medical sees disability as an individual political issue, social sees disability inequality as a collective issue
Disability as…
(bio/neuro) diversity
social construct
capitalism
gendered, racialised, intersectional
gap between low DR and high SR…features
15% population disabled, yet 1% of representatives - gap between low descriptive representation, high substantive representation - it is a FREQUENT topic (mentioned 7x day in UK)
Classic or dominant motivations behind group representation
Group membership
Group votes
Group affiliation
Intrinsic
Moral duty to represent (moral obligation, personal and social experiences) - Disability - Proximity - Solidarity
Assumed responsibility to represent (chosen commitment/position, triggered by ideological, positional, occupational connections to disability) - Ideology - Occupation
Extrinsic
Rewards for representing (absence/presence of external rewards, electoral or campaign links to disability) Electoral - Geographic presence of disabled ‘sub-constituency’
Modes of Disability Representation (Traditional)
Medical: disability is presented as an illness that needs to be treated
Social pathology: disabled people are dependent on state / society for support
Supercrip: disabled people are ‘superhuman’ ‘in spite of’ their disability
Business: disabled people are presented as costly to society, to businesses especially
Modes of Disability Representation (Progressive)
Minority / civil rights: disabled people are a minority group who have legitimate rights
Legal: disabled people are a group with specific legal and human rights
Cultural pluralism: disabled people are multi-faceted, disability is one of many differences
Consumer: disabled people are presented as a consumer group with certain wishes
Findings of Ruth’s research
Frequency: Representation increased over time, most questions were to ministers (90%) rather than prime ministers, there were ‘occasional’ and ‘prolific’ MPs
Substance: 2/3 used progressive models. More progressively framed questions in Scotland (74%) and lower in the UK and ANZ (64% and 60%)…
Personal Duty (disabled parliamentarians were 1% but asked 4.6% Qs) - Familial Duty - Gender Duty - Minority Duty - Ideological responsibility (2/3 prog rep done by those on the ideological left) - Professional responsibility - Electoral responsibility
Connections to disability seem to increase frequency, but substance is more complicated. prog rep is tied to personal, deeper connections. trad rep is connected to transactional, looser ties.