1A. You are a newly qualified GP in an Aberdeen City practice. You are consulting in your normal afternoon surgery. One of your patients, John Young is brought in by his mother. He is seven years old and has cerebral palsy. He walks with a limp and has mild learning difficulties, although manages to attend mainstream school. John’s mother is concerned because he has had earache for two days.
1a - The World Health Organisation (WHO) defines three categories under which disability can be described. List these three categories and give a brief explanation of each. (6 marks)
1B. Give any four examples of how these definitions could apply to John. (4 marks)
Disability has far reaching implications for patients, their families and others around them. In general, what might be the effect of a disabled child on their parents, siblings, peers and teachers?
Give two different examples under each heading.
Note: Remember to put different answers under each heading. (8 marks)
Parents
• Mother and/or father may not be able to combine work with the demands of caring for disabled child - financial implications for family
• Guilt at having passed on the causative gene if genetic disorder
• Psychological strain
• Caring for disabled child may be detrimental to parent’s physical health
• Some parents may have difficulty bonding with disabled child
• Some parents may form a particularly strong bond with disabled child
• Marital problems
• Increased risk of child abuse
• Over-protection of disabled child
• May become a strong advocate for their child
Siblings
• Resentment at time parents spend caring for disabled child
• Resentment at restrictions to normal family life
• May have to develop carer role
• Grow up with greater understanding of disability
Peers
• May “look out” for disabled child
• Friend may be stigmatised along with disabled child
• May grow up with greater understanding of disability
• May need to adapt activities to include disabled friend
• Teasing by other peers
Teachers
• May have lack of understanding of disability/lack of training
• May have tendency to over-protect disabled child
• May be lack of willingness to integrate in mainstream activities
• May be additional challenges in personalising education for disabled child
• Stress of managing both mainstream and additional support needs pupils in the same class
List two different points to show your understanding of the term “expert patient”. (2 marks)
Health literacy is about people having the knowledge, skills, understanding and confidence to use health information, to be active partners in their care, and to navigate health and social care systems.