2 most important aspects of peds pall care
symptom management
support with decision making / serious illness
what factors influence the transition from being intellectually aware to being emotionally aware ( for parents )
time spent with the child
interaction with healthcare
What are the key considerations in sharing serious illness information with a child?
2 concerns about withholding information from a child
Key consideration in child’s information preference / processing
what is the best ethical approach as is relates to childrens’ decision making
relational approach to autonomy
understanding the pivotal role of the family unit
what aspect of autonomy is most important for children?
being in control of what information they receive
they value choosing their level of involvement
rather than making decisions themselves
what aspects of communication are especially important in children?
implicit communication
non-verbal cues
when can pediatric palliative care begin
in utero
aspects of planning for neonatal EOL (expected not to survive after birth)
aspects of a birth plan for infant not expected to survive
3 tools for pain assessment in non-verbal children
NRS
Faces pain scale
FLACC - face, legs, activity, crying, consolability
main worries that adolescents have about death
what are some adverse outcomes for families caring for an ill child?
what are the 3 situational factors that influence a child’s perception of pain
cognitive - understanding, expectations, strategies
behavioural - activities, staff/parental response, actions
emotional - anxiety, fear, depression
non-situational factors influencing pain perception in peds
how does the WHO pain ladder differ for children?
no weak opioids
2 steps - mild vs. mod/sever
how is morphine 1/2 life affected in children?
<1yr - increased half life (dose IR q6-8h)
>1yr - decrease half life (may need more frequent dosing)
pediatric dose of:
- tylenol
- ibuprofen
- morphine
what is cerebral irritability?
which children are at risk?
unremitting agitation and distress (crying, incr. tone, seizure, agitation, sweating, sleep disruption, vomiting)
at risk: neurodegenerative disease, acute illness, non-verbal
what is visceral hyperalgesia?
what is the pathophysiology / cause?
altered response to visceral stimulation, causing pain - despite treatment of GI pathology
pathophysiology - abnormal GI sensory input / development of pain pathways (plasticity). potentially motility d/o
when do kids develop a concept of death?
age 3
death perceived as impermanent at these ages
3-6
which age is death perceived as permanent, applies to others but not self/
6-10