1
Q
PPI
A
Patient and Public Involvement is ‘Research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’, or ‘for’ them. (INVOLVE)
2
Q
What is PPI not?
A
- Disseminating findings to the public or research participants
- Patients as participants in as study
- The PPI/ research distinction is important due to ethical review processes
3
Q
Why do we do PPI?
A
funders, bottom up demand, a moral obligation, impact on research, impact on individual
4
Q
The Research Cycle
A
- Identifying/ prioritising topics
- Commissioning
- Designing Research
- Managing Research
- Data Collection
- Analysis & Interpretation
- Dissemination
- Evaluation
5
Q
Identifying/ Prioritising topics
A
- Ensures that research is relevant to the people
- Engaging with people at an early stage
6
Q
Designing Research- what does working with patients and public make you think through
A
- The participant pathway through a study
- Recruitment strategies
- Outcomes and outcome measures
- Participant burden
- Ethical implications
- Inclusion/exclusion criteria
7
Q
Challenges of Managing Research
A
- Bringing people into a formal research environment
- ## May not be accessible and enganging for everyone
8
Q
Features of data collection
A
- Peer to peer interviewing/ focus group facilitation
e. g. recruiter training and interview panels
9
Q
Analysis & Interpretation
A
- Help to put findings in a real world context
- Can identify gaps in research
- Start to plan dissemination
10
Q
Dissemination
A
- Dissemination to other members of the public
- Real life stories can highlight key findings and speak to a variety of audiences
- Part of building a reciprocal relationship
11
Q
Underpinning principles of PPI
A
- Early involvement
- Capacity building
- Reciprocity (what motivates the stakeholders, reward and recognition)
- Support, preparation and training
- Communication and facilitation
12
Q
Challenges of PPI
A
- Tokenism
- Inclusion
- Making things accessible and engaging
- Thinking critically about what we do
