Week 9

Question 1

What is the purpose of ethics in research?

Answer 1

• protecting rights of subjects
• balance of benefits and risks
• informed consent

Question 2

What is informed consent?

Answer 2

• providing participants with enough information
• providing information that the participants can understand
• no coercion/ overt/implied

Question 3

List at least 5 elements of informed consent

Answer 3

• title of agency
• invitation to participate
• study purpose/aim
• right to withdraw
• voluntary participation
• Description of risks/benefits
• assurance of confidentiality/anonymity
• conflicts of interests declared
• concluding statement
• name and contacts of researchers, institution, ethics committee
• separate consent form

Question 4

What is the point of privacy in research?

Answer 4

To conceal all matters relating to the participants

Question 5

What is the purpose of anonymity in research?

Answer 5

So that no one can identify study participants

Question 6

What is the purpose of confidentiality in research?

Answer 6

So the identities of subjects not linked to information provided therefore require the use of codes.
Data must be securely stored