What is palliative care?
Interdisciplinary care that anticipates, prevents, and manages physical, psychological, social, and spiritual suffering to optimize quality of life for patients, their families, and caregivers.
When is palliative care beneficial?
At any stage of serious illness.
Where can palliative care be delivered?
In any care setting through collaboration by different care providers.
What is a key outcome of palliative care?
Improves quality of life for both the patient and family.
What is “serious illness”?
A health condition with a high risk of mortality that either negatively impacts a person’s daily function/quality of life or excessively strains their caregiver.
What is the overall goal of palliative care + serious illness care (per slide)?
Improve quality of life for patients/families with serious or life-threatening illness through prevention and relief from suffering.
What is the ideal timing for palliative care?
Appropriate at any stage of disease—ideally should begin at diagnosis.
Can palliative care be provided while a patient is still getting disease-directed treatment?
Yes—palliative care can be provided along treatment/life-prolonging care or as the main focus.
How does palliative care relate to disease-directed therapies over the disease course?
They overlap—disease-directed therapies often start strong, while palliative care increases across the illness trajectory and continues through end of life.
Whose responsibility is palliative care (key concept)?
The responsibility of all clinicians and disciplines.
What kind of approach does palliative care use (key concept)?
An interdisciplinary approach that includes volunteers and community resources.
What support does palliative care offer to families (key concept)?
Support to help family cope during the patient’s illness and in bereavement.
What does the TIERED model of palliative care aim to do?
Proactively address sources of suffering across the illness trajectory.
What is Tier 1 in the TIERED model?
Screening, preventative, and routine palliative care.
What is Tier 2 in the TIERED model?
Palliative care triggered by emergent needs.
What is Tier 3 in the TIERED model?
End-of-life and complex palliative needs.
Who typically addresses Tier 1 needs (per infographic)?
Primary health team (e.g., neurologist, internist, advanced practice provider) addressing basic communication needs, care planning, screening, and symptom management.
Who typically addresses Tier 2 needs (per infographic)?
Extended healthcare team (e.g., social work, mental health counseling, pain medicine) and community (e.g., home care) to address emergent/intensive needs during illness.
Who typically addresses Tier 3 needs (per infographic)?
Specialist palliative care (palliative medicine, neuropalliative care specialist) and hospice for end-of-life care, complex goals-of-care discussions, advanced illness, and refractory symptoms.
Palliative care is a “philosophy of care” based on what—needs or prognosis?
Needs (not prognosis).
What does “active total care” mean in palliative care?
Total care of mind, body, and spirit.
How does palliative care view dying?
It affirms life and regards dying as a normal process.
Palliative care focuses on identification, assessment, and treatment of what 4 areas?
Pain, physical problems, psychosocial problems, and spiritual problems.
How does palliative care expand traditional disease-oriented treatment?
Adds goals of enhancing QOL for patients/families, helping with decision-making, and providing opportunities for personal growth and meaning.